Skip to main content

Our Cancer Journey - Week 9

My travel in China was timed for Kathy's good days, the end of one chemotherapy cycle and the beginning of the next.   She's had a busy week, with a visit to her surgeon (check in after 6 weeks of chemotherapy), her last cycle of Adriamycin/Cytoxan, and continuing our farm search as new properties begin coming onto the market in the Spring.

As I mentioned last week, I knew that traveling would make me uneasy.   I made a commitment to friends and colleagues over a year ago.  Backing out would impact the plans of many people who had agreed to 5 days of meetings in Shanghai as part of an effort to share US lessons learned in care processes and technology.   With Kathy's consent and perfect timing, I did the trip.

Kathy's support system includes her father, several fellow cancer survivors, and our next door neighbor, whn is a heme/onc nurse from Dana Farber with 35 years of experience.     Our next door neighbor was very interested in visiting old friends at BIDMC and volunteered to take Kathy to cycle 4 of chemotherapy tomorrow in my absence.

I'll return by Sunday night just as the effects of chemotherapy are beginning.

Kathy's doing well.  Before I left, her left breast was examined and the tumor that was very pronounced a few weeks ago, could no longer be found on palpation. It's clearly responding well to the chemotherapy.

We confirmed this week what we had expected, chemotherapy has induced chemical menopause.    Thus far, no hot flashes, mood changes, or sleep disturbances.

We're staying in touch by email.   I have a generous international roaming data plan while traveling.  Kathy's putting all her energy in the farm search, which is very therapeutic for both of us.

This will be my only overnight travel without her during chemotherapy.    She'll join me for my April keynote in San Francisco and a May keynote in Vancouver.   There are a few same day Washington and Chicago trips but those will not conflict with her treatments or her low energy days.

Care at a Distance is emotionally challenging - I want to be home and focused on Kathy.   Our emails, her support system, and a mutual shared project to create a life beyond a 5 year survival statistic give us both comfort that all will be well.

Comments

Popular posts from this blog

clip on magnetic sunglasses visit here

Save with prescription glasses and sunglasses. Prescription eyeglasses with magnetic clip on sunglasses. A wide selection of colors and styles for every budget! -GlassesPoint. Prescription eyeglasses with magnetic clip on sunglasses. A wide selection of colors and styles for every budget! Free magnetic clip on with every pair of glasses.  The operator should contact lens Plano glasses a few days of Sun and Rx on the other person. Many people choose single vision lenses, designed for a specific use, such as prescription sunglasses. Clip-ons magnetic magnetic clip ons often come with their prescription glasses frames. Prescription glasses Goggles4u dollars from 29.99 with free shipping. Takumi neodium magnet glass features recipes that are light, strong and in. The combination of some normal prescription glasses and a pair of polarized glasses that glare-resistant to outdoor activities. clip on magnetic sunglasses visit here

The Tragedy of Underfunded Mental Health Care

Today’s Managing Health Care Costs Indicator is   19,900 The NY Times  on Friday had a deeply disturbing article on a murder that stunned the mental health community here in Massachusetts.    A long-term schizophrenic man, off his medicine and spiraling into incoherence, killed a young female counselor who was the sole worker at a group home in a Boston suburb.   His mother, who works at a Boston teaching hospital, was frantic with worry as her adult son, who had been arrested for assault multiple times, was becoming more psychotic.    It was hard for her to get anyone’s attention. The counselor was the first in her family to get a college degree, and had just decided to go to nursing school.    Now she’s dead – and her family had trouble scraping together the resources for a burial.   The schizophrenic will be imprisoned for the rest of his life – which ironically could be the best chance for him to get appropriate medical care. Both...

How a Well-Intended FDA Policy on Colchicine is Harming Patients

The road to hell is paved with good intentions. The FDA has reaffirmed the truth of this aphorism with its policy about Colchicine. Here's the story: I recently spoke with a friend who has a family member suffering from Familial Mediterranean Fever (FMF), an auto-inflammatory disorder, most commonly seen in eastern Mediterranean populations. The condition is characterized by recurrent painful inflammation of the abdomen, chest and joints, accompanied by fever. FMF is associated with mutation of a gene on chromosome 16 involved with regulating Pyrin, a protein that is part of the inflammatory response. There is no specific test for the disease. Diagnosis is made on the basis of symptoms, family history, and ruling out other conditions. Since the 1960s, Colchicine, a plant extract first used for treatment of gout two thousand years ago, has been used for treating FMF. As an ancient treatment widely used prior to formation of the FDA, Colchicine did not require FDA approval as a new ...